Wednesday, October 10, 2012

NICU PTSD

Sometimes I have flashbacks.

My mother and I are sitting in her SUV in the hospital's underground garage.  I have just been discharged and we are making our way through the dimly lit rows of cars to reach street level.  I am sitting with my forehead pressed against the window. As we surface I am forced back into my seat by the sun.  I've spent the last two weeks cooped up in a small white hospital room with artificial light and stale air.  This feels unnatural.  As we sit at the intersection marking the boundary between the hospital grounds and the real world, the reality of my situation crashes over me.  I can't breathe. I might scream.  If I wasn't so numb, I would jump out of the car and run back.  But all I can do is cry and picture my tiny little ones in their small white NICU rooms with artificial light and stale air. 

My mother, the maternal juggernaut, does her best to help me collect myself.  She isn't crying, but I can tell she is hurting too. And for the first time, I understand why.  She is feeling my heart ache.  I am her child. I am in pain, and there is nothing she can do about it - a feeling that I had become all too familiar with over the last few days.

Our battle with TTTS had reached its climax with the birth of our sons via Cesarean section at 28 weeks, which gave our boys a fast pass to the NICU.  They were fitted with CPAPs, IVs, and an assortment of wires.  I had to fight every maternal instinct urging me to hold them, hug them, cover them with kisses - and just let them be.  They were so small; a touch bigger than scary small.  They needed help breathing, and I would have given anything just to breathe for them for one moment, just to give their little bodies a break.  My husband and I stayed with them until I could no longer keep my eyes open.     

The next morning I attended rounds. The language was jargon heavy and I had to keep asking questions, though they didn't seem to mind.  They were placed in adjacent rooms, and it would be another month before we were all reunited in one room.  My room was one long hallway, an elevator ride, and two sets of doors away from theirs.  I could have walked there with my eyes closed. The nurses would help me take each of them out of the incubator (I was too nervous to do it on my own) and into my arms or onto my chest for kangaroo care.  In those moments - the room, the machines, the wires, the nurses - all faded away, and all I could see were my sons.  And then it was time for me to go home.

But this was all wrong.  My husband and I should be triple checking the car seats and fussing over how to buckle the boys in properly. We should be driving home at ten miles an hour.  We should be terrified, excited, worried, and beside ourselves with happiness.   Once at home, we'd revel in our first successful diaper change, feeding, bath time, and bedtime. 

Instead, we were just terrified.  
Instead, a rotation of relative strangers will be caring for our babies.

Everything felt like a lie.

I gave birth.          You still look pregnant.
I have two sons.   They shouldn't be here yet.
I am a mother.      Where are your children.

Driving away with my mother that day, I kept thinking - I am a mother. I AM a mother - while every other emotion fought for my attention.  But what do mothers do? I had skimmed through some baby books and had asked my friends with children to find some tricks of the trade, and I was prepared to deal with engorged breasts, to be covered in everything from spit to pee, to not sleep ever again, but I hadn't read anything about this.  How to be a mother while someone else cares for your babies.  

Although I wasn't going back to work, I poured myself into my new job.  Every morning I would drive to the hospital in time for rounds, eventually learning all the jargon.  I would spend as much time as I could holding my darling little ones - singing to them, talking to them.  I had my book or knitting ready for when they fell asleep.  My husband would arrive after work, and we would spend the evening together as a family, making sure to spend equal amounts of time in each room.  As we drove home at night, we would encourage each other to stay strong, that eventually they would come home.  More often than not, the night nurse would receive a phone call from me around midnight, just to check in.

We acted out our lives over the next two months.  I received emails from Baby Center telling me what size vegetable the babies would be that week in the womb.  I printed pictures of the boys to bring to my baby shower.  Ryan painted their room robin's egg blue.   And we rode the NICU roller coaster.   We knew what every number on the monitors meant.   We knew which beeps were good and which were worrisome.  We knew our As, Bs, and Ds: apnea, bradycardia, and desaturation. We learned how to change a diaper through the holes of the incubator.   During Ryan's first go at this, he diapered Sawyer's arm into the mix.  It felt good to have a new parent moment, even if it was under the watch of a nurse.  Slowly, incubators were exchanged for open air beds, and bottles replaced feeding tubes. And then it was time for them to go home.

Sawyer was coming home with oxygen and monitors.  The thought of not having a doctor no more than ten feet away was troubling.  Did they really expect us to be able to do this ourselves?  After a crash course from the nurse on CPR and how to operate an oxygen tank in which I wrote down every single word she said, we packed up two months worth of accumulated baby stuff - clothes, blankets, toys, and cards.

We dressed the boys in the beautiful hand-knitted rompers Ryan's sister made them. We quadruple checked the car seats, and Ryan drove us home at five miles an hour.

Having only held them both at the same time only a handful of times, I knew the first thing I was going to do when we arrived home.


 That was one year ago on October 6th.






  

Tuesday, October 2, 2012

Welcoming Fall


Michaelmas: Beware the Blackberry Bushes

I love when the seasons change.  It is hard to ignore the beauty of nature as she exchanges her flowery, green gown for one of cascading yellows, oranges, and reds; a palate that warms your soul, which is convenient since you can no longer rely on feeling warmth from the sun.  You have to find it huddled around a bonfire,  in a mug of hot apple cider, or in that worn out, oh so comfortable sweater that you've been waiting to resurface.

The pre-frost harvest of the co-op garden we share with our next door neighbors has brought in the last of the tomatoes and peppers, perfect for chili.


We took the boys to the big wooden playground where they discovered their new favorite thing: fallen leaves.  They gathered and held on to every leaf we came across, and you'd be surprised at how many they could fit in their little hands.  I cannot wait until there are enough leaves to rake up into a pile fit for playing. 


With our autumn spirits in full swing, we celebrated Michaelmas on September 29th.  Michaelmas is one of the Quarter Days.   These are the four days of the year, roughly three months apart, which coincide with religious holidays AND the two equinoxes and two solstices. You can celebrate Michaelmas on quite a wide spectrum, focusing on archangels or dragons or both.  Michaelmas is the Feast of Saint Michael, the archangel who is credited with casting Satan out of heaven (and right into a blackberry bush).  Along with this story, running along parallel themes of courage and bravery, is the tale of Saint George who defeated the dragon of Silene.  Both of these narratives fit neatly into the good versus evil archetypes, but they also encourage self refection of the "evils" in our own lives, internal and external.  Now, as days grow shorter, colder, and darker, is an ideal time to acknowledge and dispel these forces so that we may fill our homes with warmth and light. 

Our celebration was simple and fine tuned to be enjoyable for our boys.  (Although I stockpiled some ideas for when they are a little older and better able to wield swords.)  Since the boys are still working on scribbling, I decided that I would do the Michaelmas crafting this year.  After some late night brainstorming, we decided to make a simple felt tree wall hanging with colorful leaves for the boys to collect and rearrange.

I had some large pieces of felt left over from making their stump playhouse and using the grout lines of our kitchen floor as a guide, cut a large piece of light brown felt.  I folded over the top edge and hot glued a seam, leaving enough room for a dowel rod.  I cut out a dark brown tree, no pattern, just kind of went for it, and hot glued that onto the large piece of felt.  I sketched some leaf patterns and assigned my husband the task of leaf production while I made the bird and owl.  After tying a ribbon onto either side of the dowel rod, we planted our tree on the wall in the boys' corner of the living room.





Our hybrid tree was a big hit!

I also made a Michaelmas pie.  I found the recipe here.  The ingredients come from combining the apple harvest with the tradition of not eating blackberries after Michaelmas because the Devil fell/spit/cursed/and did who knows what else to them after Saint Michael gave him the boot. I used Honeycrisp apples because A. I had some left over from our visit to Soergel Orchards because B. If they are in season, they are the only kind of apples I buy.  It was a simple recipe that produced a simply delicious pie, the sweetness of the fruit was the perfect complement to the brown spices which filled our home with the smell of fall.  Next time - after having a conversation with my pie baking expert mother which probably should have taken place BEFORE I made the pie - I am going to add a little more flour to the filling to thicken it a bit and brush some milk on the top crust to give it a golden brown color.




Now that we have properly welcomed the season, there is a lot of autumn knitting, crafting, and baking to be done before nature changes her dress once again, bringing a fresh set of ingredients, aromas, and traditions.

What Little Boys Are Made Of:

Co-op garden tomatoes and peppers